OUR STORY

Tilly's Tubes Backpack Stand

WHO IS TILLY? WHAT IS TILLY'S TUBES?

So many of you may be wondering who Tilly is and why we started Tilly's Tubes......

I'm Rachel, Matilda's mum, we call her Tilly for short. She was born at 28 weeks and has pretty much been tube fed since the day she was born.

Once Tilly became more mobile we discovered that the backpacks provided were way to big for her and weighed so much for her tiny growing body.

When we realised that this was likely to be a long term plan for Tilly we wanted to look into how we could make things lighter for her, whilst allowing her to choose and be expressive with her choice of bag.

Tilly's Tubes Backpack Stand - Alternative Adapted Backpack

So me and my step dad got to work, designing and trialling different designs, this was when we realised that Tilly isn't the only one who these stands could benefit.....

This is when we launched Tilly's Tubes .

Allowing everyone in the tubie world to be able to carry their feed with less weight and in the style of their choice with the ability to change their bag depending on mood, occasion or just because you can.

Whilst making it as affordable as possible as we all know tubie life isn't cheap.

Simple things like our stand have made a huge difference, not just to Tilly's life but ours as well.

Freedom to ride with Tilly's Tubes Backpack Stand

Tilly's feeds are changed every 4 hours using various size bottles and 2 different brand of machines, so having an adaptable and universal product has been life changing!

We have now recently expanded to produce Tube Tape. Tilly was previously NG tube fed and we understand the importance in being able to express yourself through colour and patterns... making medical supplies a little less medical.

Hopefully this little bit of insight will help you understand who we are and what led us to launch Tilly's Tubes.

Check out our Instagram for more information.

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